Charity of the Year 2019 - NSPKU
January 30, 2020
We're ecstatic to announce that we managed to raise a whopping £4,742.84 for our charity of the year in 2019, NSPKU!
It was an excellent effort from all staff involved to contribute to such a worthy cause, and we had a fun time doing it too!
Sponsored bike rides and fancy dress days, along with various raffles and other events help us get to this great total. Hopefully the final sum will help with the fantastic work and help that NSPKU provide.
We were incredibly happy to present a cheque for the total raised to Tom Chimiak from NSPKU, who lives with the rare condition of Phenylketonuria.
The result of our fundraising effort was handed over by our Customer Services Director Emma, and Senior Installation Team Leader Gareth - alongside his family and little boy Freddie who is also affected by PKU. Was such a proud moment, and we were really glad to have had the chance to raise money for the excellent work NSPKU does
Phenylketonuria (PKU) is a rare metabolic disorder. People with PKU cannot metabolise phenylalanine, an amino acid found in protein foods. This builds up to levels that are toxic to the brain. PKU is diagnosed by the “heel prick” new-born screening test.
PKU is a treatable condition. If not correctly treated it results in severe and irreversible brain damage. Treatment by restricted diet has been shown to be effective. People born with PKU who receive the correct treatment can now have the same educational and career goals as people without PKU.
For more information visit: https://www.nspku.org/about-pku/